Announcing a special new fund
30 August, 2022

It is estimated that at least 25,000 people in Aotearoa/New Zealand have Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS).

ME/CFS is considered a major disease that we still know very little about; significantly more research needs to be done and there is a serious lack of funding for this work.

Zest for Life Trust was established in the memory of Zascha Mann, a young Nelson man who died in July 2021 as a result of a long struggle with this debilitating condition. The name Zest for Life was chosen in recognition of Zascha’s exuberance for life as adventurer, traveller, skier, mountain climber, kayaker, and rock climber.

Severe patients, like Zascha, often have desperately difficult lives. People with the condition often feel they are a burden and asking for help can be a barrier to getting relief.

The small cash grants that will be made from the Zest for Life Fund will be used for such things as assistance with driving to appointments, help with housework, cooking and advocacy, or respite care.

If you’d like to donate to the Zest for Life Fund :

DONATE NOW

For further information about CFS please email Ange Palmer at Zest for Life :

[email protected]

For more information about M.E./Chronic Fatigue including frequently asked questions please go to the website of the Associated New Zealand ME Society (ANZMES) :

www.anzmes.org.nz/what-is-me

Other Recent News

From the Chair

Since that last newsletter we’ve also added two new endowment funds, to support Life Linc and Nelson City Brass.
Read more

New EO - Nettie Stow 

Personal highlights so far include the allocation of funds from the TOTSCF 2023 grants round. I was impressed by the quality of applications from our community and inspired and humbled by the generosity of our donors who made this possible .
Read more

Thanks to Datacom

Nettie’s induction ran a lot smoother with support from Datacom, who sourced her a brand new Dynabook laptop!
Read more
1 2 3 24

Make a lasting difference

Act now to begin building your legacy through Top of the South Community Foundation
Give Where you live
© Top of the South Community Foundation 2023
Photos from Nelsontasman.nzOnly Marlborough and Unsplash.
Made with ♥️ by Avoca in Nelson, New Zealand

Join Our Newsletter

Get the latest updates from the foundation